SB-625 (Nguyen): Parental Consent for Genetic Testing in Newborns
AVFCA Commentary:
Legislation Details
Bill Name: Newborn screening: genetic diseases: blood samples collected
Bill Number: SB-625
Bill Author(s): Nguyen
Legislative Session / Year: 2023
State: California
AVFCA Position: Support
Bill Synopsis: This bill would require the department to provide information about the genetic testing program, and to permit the parent or legal guardian to withhold consent to the storage, retention, and use of the newborn child’s blood sample for medical research.
LegInfo Bill Link: https://leginfo.legislature.ca.gov/faces/billTextClient.xhtml?bill_id=202320240SB625
Most Recent Bill Analysis:
Effective Date if Passed: 01/01/2026
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BILL STATUS
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BILL STATUS
Held in Suspense file in Senate Appropriations Committee
Passed Senate Policy Committee(s)
Referred to Senate Policy Committee(s)
Introduced
BILL STATUS DETAIL
Returned to Secretary of Senate pursuant to Joint Rule 56 (02/01/24).
January 18 hearing: Held in committee and under submission (01/18/24).
January 16 hearing: Placed on APPR suspense file (01/16/24).
From committee: Do pass and re-refer to Com. on APPR. (Ayes 8. Noes 0. Page 2980.) (January 11). Re-referred to Com. on APPR (01/11/24).
Referred to Coms. on HEALTH and JUD (03/01/23).
From printer. May be acted upon on or after March 19 (02/17/23).
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